Wednesday, 31 March 2021

'Make a memory': campaigners fear revised Countryside Code lacks bite

Visitors urged to ‘share the space’ but latest revision lacks clear rules over barbecues and dogs on leads Seventy years ago, visitors to the countryside were warned in rhyme that the farmer would “frown” on “lad or lass who treads his crops, or tramples grass”. Now the revised Countryside Code will encourage the unprecedented number of domestic holidaymakers to “be nice, say hello, share the space” and “make a memory” when they visit parks, coasts, woods and farmland this summer. Continue reading...
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California shooting: four killed, including child, in office building in Orange

Police arrived as shots were being fired; suspect taken to hospital after being shot by officers Four people, including a child, have been killed and a fifth person injured in a shooting at a southern California office building, with the suspected shooter wounded by police. It happened at around 5.30pm on Wednesday at a two-storey office building in Orange, south of Los Angeles. Continue reading...
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A Reporter at Large: Swamp Nurse

What’s the best hope for the first child of a poor mother?

Luwana Marts standing on a deck with Maggie Lander and family
Luwana Marts, a “nurse-visitor,” with Maggie Lander, her daughter, Maia, and Maia’s father, José.Photograph by Alec Soth for The New Yorker / Magnum

In the swamps of Louisiana, late autumn marks the end of the hurricane and the sugarcane seasons—a time for removing plywood from windows and burning residues of harvest in the fields. Then begins the season of crayfish and, nine months having passed since the revelry of Mardi Gras, a season of newborn Cajuns. Among the yield of infants in the autumn of 2004 was a boy named Daigan James Plaisance Theriot, and, on the morning of Daigan’s thirtieth day of life, he was seated next to a bag of raw chickens in the back of an Oldsmobile Cutlass. His mother, a teen-ager named Alexis, was in front, squeezed between her younger sister and her sister’s latest beau, a heavily tattooed man who had just been released from maximum-security prison. The car came down a road that begins with a bayou and ends in dented trailers, and stopped at a small wooden house.

When Alexis’s sister leaned into the back seat to fetch the poultry, the young man, grinning, slipped a hand down the back of her jeans. Alexis stared at the couple for a moment, then pushed them aside to pick up Daigan. Alexis’s hair was long and streaked with pink, and her face was a knot of frustration. As Daigan began to cry, she crossed the yard denouncing in absentia his father, whom she called Big Head: “If I see him, I will hurt him—Big Head asking for it now.” When she reached the porch, which was crammed with auto parts and porcelain toilets, she fell silent, then forced a smile. Amid the fixtures stood a tall black nurse.

The nurse, Luwana Marts, holds one of the stranger jobs in the Louisiana state bureaucracy: she is a professional nurturer in a program called the Nurse-Family Partnership, which attempts to improve the prospects of destitute babies. A few months earlier, Alexis, eighteen and pregnant, had arrived at a local government office seeking Medicaid for her impending delivery. She ended up with both the Medicaid and Luwana. As a rule, Cajun families don’t welcome government intervention, especially when it occurs inside their homes, involves their infants, and means the presence of a dark-skinned person. To some parents, Alexis among them, Luwana was a spy in the house of maternity, and so she now and again had to lie in wait for reluctant beneficiaries.

Alexis maneuvered herself and Daigan past the toilets, from which cacti had started to grow, and pushed open the front door with her hip. She entered a combined living room, dining room, kitchen, laundry, and storage facility that was home to five people, a dying cockatoo named Tweety, and multitudes of flat silver bugs. Luwana followed Alexis, Daigan, little sister, and boyfriend inside. That morning, feeling the onset of flu symptoms, Luwana had decided to avoid contact with the infants she called her “little darlings.” In the field, though, calculations of risk were subject to change. She dropped her satchel, slathered her hands with Purell disinfectant, and reached out. Alexis handed over Daigan and wrapped her arms tightly around herself. “So, tell me,” the nurse began with practiced tranquillity as she scanned a body in a playsuit for damage. “Not the happiest day of your life?”

Alexis and nineteen other girls in Luwana’s caseload call her their “nurse-visitor,” a term whose genteel ring seldom comports with the details of her job. She is one of eight nurses, all mothers themselves, who work the parishes of Terrebonne and Lafourche, persuading poor first-time mothers-to-be to accept assistance. The Nurse-Family Partnership model is currently being tried in Louisiana and nineteen other states on the basis of promising preliminary results—results achieved in the face of the nurses’ preposterously difficult assignment. In regular visits until a baby is two years old, they try to address, simultaneously, the continual crises of poverty and the class-transcending anxiety of new maternity: this creature is inexplicable to me. Despite its ambition, the program is rooted in a pessimistic view of the future that awaits an American child born poor—a sense that the schools, day-care centers, and other institutions available to him may do little to nurture his talents. Shrewder, then, to insulate him by an exercise of uncommon intrusion: building for him, inside his home, a better parent.

Thus, no matter how chaotic the scene—no matter that Alexis’s sister had taken a break from hacking chicken parts by the kitchen sink in order to satisfy the ex-inmate’s sexual needs in the next room—Luwana’s first task is to create an aura of momentousness around the new baby. As she moves through a household, giving advice about routine-building, breast-feeding, and storing shotguns out of reach, she attempts to win over not just a young mother but a typically unwieldy cast of supporting players, from the baby’s father to the great-grandmother getting high in a tent behind the house. What Luwana tells each family may seem, on the face of it, fiction: that in this infant enormous possibilities inhere. But such fictions can be strategic, especially in cultures in which the act of becoming a mother is honored far more than what the mother subsequently does for her child.

Alexis, who wore a tight red T-shirt, would have been striking even without the pink improvements she’d made to her caramel-colored hair, and since fifth grade, when she’d lost interest in schoolwork, most of her opportunities had come from men who’d taken note of her looks. Lately, she’d been wishing that she’d had a longer, simpler childhood, but, in the childhood that she had, full hips and breasts and lips had served her well. They served her less well now. To Luwana’s questions about Daigan’s feeding schedule, she responded monosyllabically while studying her manicured fingers. She’d received the manicure, plus some blue balloons and a chocolate-chip cake, on what she called the “heartful” occasion of Daigan’s birth. The days preceding his arrival had not been happy. Alexis lived with her mother and father, a grocery clerk and a construction worker who were in constant conflict. When Alexis was eight months pregnant, the fights grew so fierce that she fled the household altogether. Her recent return testified less to domestic reconciliation than to the impact that a squalling baby has on the sleepover invitations a girl receives.

As Luwana tried to draw Alexis out, the phone rang, and Alexis covered her ears. “I’m guessing this is Daigan’s dad who keeps on calling,” Luwana said, after the third round of unanswered rings. Alexis met her eyes for an instant, then burst into tears. “O.K., now,” the nurse said, “spell it out for Miss Luwana.” Between sniffles, the proximate cause of distress became clear. Daigan’s father, a sturdy twenty-six-year-old named James, worked on a tugboat on the Mississippi River. That weekend, he would be returning to shore and expected to have sex with Alexis, though she was not healed from childbirth, nor was she using contraception.

“No way!” Luwana said. “Keep your legs closed: embed that in your brain. Tell him to keep his hands to himself. And if you can’t stand up for yourself, stand up for Daigan. You’ve got a lot of work ahead, giving him what he needs. Look around, Alexis. You need another baby in this picture?”

“No,” Alexis said dully. Then she brightened: “Miss Luwana, maybe you can write me an excuse note, like for gym?”

What Luwana tells each family may seem, on the face of it, fiction: that in this infant enormous possibilities inhere.

 
Photograph by Alec Soth / Magnum

Luwana’s church friends smiled knowingly when they learned that she worked for the state. They pictured cubicles, potted plants, and cushy hours. She seldom corrected this impression, nor did she say that some mornings, driving her six-year-old Maxima toward some difficult case, she wanted to turn north and spend the rest of her working life in more high-minded quarters. But Luwana’s efforts were invigorated by the fact that twenty years ago she was herself a poor, pregnant teen-ager in these swamps. “I know now that there were government programs on the books designed to help girls in my situation, but back then, especially if you were black, you didn’t hear about them,” she said. She is now thirty-eight, with two sons and a husband who has spent most of his working life in a mill that makes paper cups. It took her fourteen years, between child-rearing and stints as a nurse’s aide, to earn a bachelor’s degree in nursing. Her state job pays thirty-five thousand dollars a year, half of what she’d make in the emergency room of a private hospital. “Oh, I have my material longings—every so often I’ll throw a pity party for the house I’ll never have,” she said. “But quite a few of us nurses are working, you could say, in the context of our own memories.”

“How he doing?” Alexis asked uneasily, as Luwana’s fingers explored Daigan’s soft spot.

“You’re the mama,” Luwana responded. “You tell me.”

“He’s got a big head like his father,” Alexis said under her breath. Then she rallied: “He’s not as cranky as he was. And one thing I learned already is how he cries different when he’s hungry than when he’s wet.” Luwana bestowed on Alexis a dazzling smile that she had thus far reserved for Daigan. “Making that distinction is important,” she said. “You’re listening to him, and in his own way he’s explaining what he needs. Pretty soon now he’ll be making other sounds, and when he does you’ll want to make that noise right back. He’ll babble, and then you’ll talk to him, and that’s how you’ll develop his language. Now, what you may also find, around five to eight weeks, is that he’ll be crying even more—it’s a normal part of his development, but it can also stress out the mom, so we’ll want to be prepared for it. The main thing will be keeping calm. And if you just can’t keep calm—if you find yourself getting all worked up and frustrated—well, then what?”

“Put him down? So I don’t hurt him, shake him, make him brain-dead?”

“Put him down and . . . ?” Luwana drilled her girls hard on this particular point.

“Call someone who isn’t upset? Let the baby be, and get help.”

Luwana turned to Daigan and clapped. “See, your mama is getting it,” she said, using the high-frequency tones that babies hear best. “She’s surely going to figure you out.”

There was a trick that Luwana relied on to stave off dejection: imagining how a given scene would unfold if she weren’t in it. In Alexis’s case—one that, in terms of degree of difficulty, fell roughly in the middle of her caseload—she knew that slight improvements had already been made. At Luwana’s urging, Alexis had stopped drinking and smoking when she was pregnant and had kept her prenatal appointments. So she wasn’t incapable of changing her life on Daigan’s behalf; the odds were just long.

Sitting cross-legged on the floor now, Luwana sang “Clementine” and made faces at Daigan, and for a moment Alexis studied this demonstration of engagement with her child. But then her gaze drifted over to her sister and the ex-con, who had emerged from the bedroom to chop the rest of the chicken. The young man, whose tattoos included white-supremacist ones, put on mirrored sunglasses for this task, a fashion choice that made Alexis giggle. Luwana’s primary subject that day was infant attachment, a topic she tailored to fit Alexis’s limited attention span. “A funny thing about the axe murderers,” she said casually. “Usually something missing in the love link.” And, indeed, axe-murdering seemed to register with both Alexis and the former prisoner, who set down his knife and came over. “I need to hear, too—mines is horrible,” he said. “We whup him but since he turned two he don’t do nothing we say, probably ’cause his mama on drugs and sleeping around and getting locked up—well, she’s a whore.”

“You hit a two-year-old?” Luwana asked, her eyes narrowing. “You teach him how to fight and are surprised when he turns around, starts fighting you?” She then fixed her stare on Alexis, who began examining the brown linoleum floor.

“The love link,” Luwana began again. Now the room was still. “It’s a cycle. When there’s no safe base for the baby—when you’re not meeting his basic needs, satisfying his hunger, keeping him out of harm’s way—there will be no trust, no foundation for love. And that’s when you might just get the axe murderer. Maybe sometimes we have a baby and expect that baby to comfort us? Well, sorry, it works the other way around. It’s on you now to comfort him, earn his trust, because that’s how Daigan is going to learn how to love.”

Infant-development strategies, like other forms of social capital, are perversely distributed in America—fetishized in places where babies are fundamentally secure and likely to prosper, undervalued in places where babies are not. The nurse-visiting program aims, in a fashion, at equalization. The territory that Luwana and her colleagues cover begins an hour’s drive southwest of New Orleans, down fog-prone highways lined with cypress trees which lead to the Gulf of Mexico. On the shoulders, turkey vultures pause, flicking mud from their wings. Mississippi River sediment shaped this marshy delta, to which eighteenth-century French Acadians, expelled by the British from Nova Scotia, laid a claim not hotly contested. The terrain now occupied by the exiles’ descendants is muggy, heavily wooded, and visited so often by hurricanes that Katrina, which made landfall near here, failed to register as a main event. Residents have another, steadier battle with nature, because they’ve built their lives on one of the fastest-sinking landmasses on earth.

The social demographics are almost as fragile. Louisiana literacy rates are among the nation’s lowest; infant-mortality and child-poverty rates—thirty per cent of all children are poor—are among the very highest; and almost half of all births are to single mothers. Historically, the swamp region’s topography isolated it from the rest of the state, but drawbridges and thoroughfares have been erected in recent years, and cane fields now give way to Wal-Marts. Still, idiosyncratic child-rearing beliefs endure: a baby will become constipated if held by a menstruating woman; formula is healthier than breast milk; giving an infant a haircut before his first birth-day will stunt his growth and hurt his brain.

The cases that Luwana and her fellow-nurses take typically begin with a referral from a public-health or prenatal clinic: a form indicating the age and address of an expectant mother and the baby’s due date. Occasionally, a nurse shows up at the given address to find a mother-to-be converting Sudafed to methamphetamine on a hot plate. Other times, a pregnant girl’s father is hostile because he’s the probable father of his daughter’s child. But the nurse’s typical commission is to work with what she finds. And while Luwana believes that some aspects of mothering are instinctual, what she teaches is more like applied science. Her tools include a polystyrene demonstration baby named Dionne, picture books, a raft of developmental checklists, and, above all, her trade’s bleak knowledge: babies can get used to almost anything—as many of those babies’ mothers had.

The Nurse-Family Partnership program began twenty-eight years ago as the obsession of a developmental psychologist named David Olds. He is fifty-seven years old, with clear blue eyes and a tendency to fidget not unlike that of Luwana’s adolescent mothers. He grew up in a working-class household and as a young man taught in an inner-city day-care center, an experience that led him to suspect that by age four or five some children are already gravely damaged. In the nineteen-seventies, after earning a Ph.D. at Cornell under the late child psychologist Urie Bronfenbrenner, he began working with colleagues to translate this grim view into an elaborate scheme of prevention. At the time, scientific knowledge about early brain development and the importance of a child’s first years of learning was more limited than it is now. But for Olds, who has one biological child and two adopted children, intuition as much as evidence suggested that the rescue effort should begin before birth, and unfold in the setting where an infant would spend most of his time. As for what sort of person a low-income young woman might trust inside her home, he and his colleagues settled on nurses, who in poor communities have high status and medical expertise that many pregnant women want. In 1978, Olds used a federal grant to test his idea in Elmira, an economically depressed, mostly white community in New York’s Southern Tier, which had the highest rates of child abuse and neglect in the state.

“Some policymakers look for cure-alls, which this isn’t,” said Olds, who continues to study his protocol’s effects as the director of the Prevention Research Center for Family and Child Health, at the University of Colorado, in Denver. “We keep refining how we do this as the nurses report back on their experiences, because there’s still a lot that we don’t know—for instance, how best to help mothers who are battered or mentally ill.” Nonetheless, when he conducted random-assignment evaluations (among the most strenuous tests of a social program’s effect) to gauge how the Elmira mothers and children were faring at the completion of the program, he found more improvement than he had expected. One of his chief concerns had been child abuse, and it turned out that children whose mothers had finished the nurse-visiting program were far less likely to be abused or injured than their counterparts in a control group. He also discovered that by the time the nurse-visited children were four, their mothers were more likely to be employed, off public assistance, and in stable relationships with their partners. Evaluations of two subsequent pilot programs—with primarily black families in Memphis and a racially diverse group in Denver—showed less dramatic results against control groups but suggested additional possibilities. By age six, for instance, the nurse-visited Memphis children had larger vocabularies, fewer mental-health problems, and slightly higher I.Q.s. In all three sites, the mothers had fewer subsequent children and longer spaces between them. An economic analysis of the Olds experiment commissioned by the state of Washington concluded that the approach—which currently costs around four thousand dollars per year per family—was cost-effective as well, because the children aided by the nurses had required fewer expensive social services such as foster care and hospitalization.

The early optimism surrounding programs meant to help poor children is often dispelled by the rigorous assessments that come later. Children may make startling intellectual and functional gains in the hothouse of a model program—say, a preschool run by skilled and idealistic teachers—but those gains tend to vanish when the children move on to their communities’ less hospitable institutions. This phenomenon, known as “fade-out,” is one of the great frustrations of antipoverty policy, and I was first drawn to Olds’s work because his long-term findings seemed to defy the regressive trend. By the time the Elmira children turned fifteen, they were still demonstrably better off than their control-group peers. For instance, they’d been arrested far fewer times, one of several findings that inspired the U.S. Department of Justice to cite Olds’s infant-intervention program as a model for the prevention of juvenile crime. I wondered, however, about the objectivity of the Olds studies, since, regardless of acceptance by peer-reviewed publications like the Journal of the American Medical Association, he is essentially grading his own work. When I raised specific questions about the long-term outcomes in Elmira, Olds decided to recalculate his data using seven different evaluation methodologies, grasping that such a test might undercut his life’s work. He later reported that some of the original findings—for instance, those about Elmira teen-agers drinking and running away less than their counterparts—weren’t holding up under a preliminary analysis. He was so dismayed by these results that he seemed oblivious of the fact that other evidence of the improved futures of nurse-visited children and their mothers was now about as solid as findings can be when the subject is social policy’s impact on human behavior.

The nurse-visitor approach makes some liberals uneasy, because they fear that its focus on good parenting will undermine the fight for decent schools, quality day care, and other institutional supports for poor children. Libertarians recoil at a government-funded program that meddles in private lives, and child-welfare advocates have been frustrated by Olds’s restraint. In their view, a “scientifically proven” approach like nurse-visiting could have attracted bipartisan support and been widely implemented years ago, if its creator had more emphatically promoted it.

Olds’s cautiousness is based not just on a sense of personal fallibility but on what he considers the faltering of Head Start in the late sixties and seventies. A rapid, politically driven expansion inflated public expectation while diluting program standards; by the eighties, conservative policymakers were using Head Start’s modest results to justify the rejection of other government antipoverty programs. Olds wants his protocol to expand incrementally, as he fine-tunes it. Currently, thanks to a hodgepodge of public and private funders, nurse-visitors in places as diverse as Los Angeles, Fargo, Allentown, Tulsa, and Bedford-Stuyvesant serve an annual twenty thousand of the United States’ 2.5 million low-income children under the age of two.

Louisiana, where I decided to watch Olds’s ideas at work over the course of a year, is one of nurse-visiting’s most difficult settings. Legislators there have been sufficiently impressed with the program to more than double its size in four years, with the help of federal Medicaid dollars. But, in a state where nurses often run out of breath when recounting the disadvantages of their clients (“The mom I’m working with now is a sixteen-year-old unmedicated, bipolar rape victim and crack-addicted prostitute with a pattern of threatening to kill her social worker, who recently abandoned her baby at her ex-boyfriend’s sister’s, and who has an attempted murder charge in another situation—well, I think I’ve got all the risk factors,” a colleague of Luwana’s said one day), nurse-visiting is unlikely to be mistaken for a cure-all.

In the bayou, every schoolchild knows that a shrimp’s heart is in its head, and that now it’s cheaper to buy that shrimp from China. So last winter, in a neighborhood called Upper Little Caillou, people who once worked on the water were trawling for a service-sector niche. On homemade signs in yards, the inventory of salable goods continually evolved: “Shrimp/Alterations/Vinyl Blinds”; “Turtle Meat, Adult Novelties & Bail Bonds.” Maggie Lander, a seventeen-year-old client of Luwana’s, was among the residents hawking what she imagined rich people might want, such as her mother’s cache of Harlequin novels. In the interest of clarity of message, though, the front of her home bore just one sign—“No smoking”—on behalf of her one-year-old daughter.

In a few years, Maggie figured, her daughter would perceive the deficiencies of her home, as Maggie did—understanding, for instance, that a sheet stapled to the ceiling wasn’t what people usually meant by an interior wall. But she chose to believe what Luwana had told her: that babies didn’t care about the surface of things. Their standards were deeper, Maggie believed, than those of some grownups she knew.

In addition to selling secondhand goods, Maggie worked for a janitorial service. She has a lisp, a vulpine face, and auburn hair that she parts down the middle and often lets fall over her eyes. When Luwana came around, though, Maggie tucked the strands behind her ears, revealing the sallow beauty of a Victorian consumptive. For a half-Mexican, half-Native American schoolmate named José Hernandez, the sexual attraction had been intense. It wasn’t entirely an accident when, after a year and a half of courtship, she got pregnant.

In the bayou region, which is traditionally Catholic, no doctors admit to performing abortions. Home remedies, though, are highly evolved: blue cohosh root, a belly flop from bed to floor, the placenta-rupturing magic of cocaine. (“Is the baby shaking yet?” practitioners of this late-stage strategy asked when they entered the local emergency room; they knew the drill better than the doctors did.) But most pregnancies here were not terminated; as Maggie’s mother liked to say, “God doesn’t make mistakes.” Maggie concurred with this theory. Still, when Luwana first appeared on her broken front porch, she was relieved to have a fresh pair of eyes on her life.

David Olds and his researchers like findings that can be quantified, and Luwana has learned to report her experiences accordingly. The forms she filled out, however, didn’t always capture the extent of a family’s despair. The first time she’d come to Maggie’s house, she had found an intelligent, underfed tenth grader in her second trimester who was sick with untreated hepatitis B and was also trying to care for her mother, who was bedridden and weighed eighty-two pounds. “I was in another world then, wanting to die,” Maggie’s mother, whose name is Tammy, recalled. “I’d been played the fool by a man I thought wanted a wife.” Though mother and daughter shared malnourishment, depression, and very close quarters, they seemed to exist in separate spheres.

One afternoon before Christmas, the effects of Luwana’s yearlong campaign against hopelessness were easy to see. The baby, whose name is Maia, was an exuberant babbler, with a paunch so magisterial that her patchwork jeans were left unbuttoned. Maggie’s mother was rounder, too, thanks to antidepressants, and she was working alongside Maggie at the cleaning company. Maggie was buoyed by her recent engagement to José, whom Maia plainly adored. He had moved into the house shortly before his daughter’s birth, and he, Maggie, and Maia now occupied a sweltering room in the rafters.

As Maggie discussed her low-budget wedding plans with Luwana, she bounced her dark-skinned daughter gently, while her fingers traced shapes on the baby’s thigh. Maggie had become a diligent student of child-development technique, reading aloud so often from the parenting handouts Luwana had given her that she got on José’s nerves. “She’s, ‘Listen to this on early brain development,’ and I’m like ‘O.K., I was here when Luwana went over it, I know,’ ” he said. “But she has to memorize this stuff.” Luwana, of course, found the habit agreeable, and privately gave Maggie her highest praise: “The girl’s an overcomer.” But, in the swamps, a massively improved life is not the same as a good one.

Maggie was now weak from the interferon that Luwana pressed her to take for her hepatitis. Maggie didn’t know whether she had caught the disease from the twenty-five-year-old to whom she lost her virginity, at age thirteen, or whether she had been born with it. But the combined pressures of infirmity and maternity had led her to a decision with which Luwana took strong issue: dropping out of school after Maia was born.

“I’m just trying to see that we’re taking logical steps here,” the nurse said gently. A fiercer iteration of her argument—that bearing a child as an unmarried teen-ager and failing to finish high school were matchless predictors of lifetime poverty—had just brought tears to Maggie’s eyes. “You have too much to lose, and I know you don’t want to clean houses all your life. Remember when I met you? It was one of the first things you said—how adamant you were about finishing?”

“I will go back, Miss Luwana, I promise,” Maggie replied. “It’s just now, with my job and Maia doing so many new things—I don’t know. . . .” Luwana’s concern with diplomas, career plans, and jobs with benefits wasn’t shared by many people Maggie knew. In a sinking region, land and housing came cheap, and dinner could be yanked from the brown water, so uneducated people could in fact “work the odd one,” “do for themselves,” and get by.

Luwana, like many of her clients, is good at suppressing emotion. Among her cases were a young mother who had attempted suicide in her third trimester, two others who’d been violently abused, and one who was paraplegic and mentally disabled. Maggie’s case troubled the nurse differently. She saw in the girl something of her younger self—“You know, that caged bird singing”—and feared the potential was going to be lost.

“I mean, I’m not going to be just some dropout,” Maggie promised Luwana now, gathering conviction. She reminded the nurse of a pact she’d made with José, who worked nights with her on the cleaning crew and spent his days in high school. He’d get his diploma while she took care of Maia, then it would be her turn for school.

“So he’s going to be the main one keeping Maia, is that what you’re saying?” Luwana said skeptically. “You’re going to trust him with her next year when you don’t trust him now—when he doesn’t wake up when she’s crying?” In the year that Luwana and Maggie had spent together, Luwana had grown alert to the girl’s romantic habits of mind.

When Maggie and José cleaned houses for lawyers and car dealers, José enjoyed discoveries of drug stashes and signs of affairs. “Wife large,” he’d say with a broken-toothed smile, brandishing a find. “Panties behind the trash can in the bathroom, petite.” Maggie preferred to dwell on other evidence. “I like dirty kitchens more than the fancy spotless ones,” she said, “because in the dirty ones you can picture the homey wife and the father and kids all eating together and talking like a family.” She hoped to replicate this scenario with José and Maia.

“Let’s see,” she said one day of the family life she had personally experienced. “In the last few years, we stayed in that trailer park we couldn’t afford, then the little blue house we couldn’t afford, either—had to give it back. Then a trailer park, then my auntie’s trailer when we couldn’t afford the trailer, then back to the trailer park, then straight to a little bitty camper behind my aunt’s trailer—now, that was tiny, you walk in the door, there’s a mattress and a table and that’s it. Then we moved in with my uncle, then with my mom’s boyfriend, then back to the trailer park, then back to the boyfriend, then back to my uncle, and then here.”

Luwana had bettered her own circumstances with the help of caring teachers and strong parents, neither of which Maggie seemed to have. Her father, an illiterate as well as an addict, beat her mother when Maggie was young, and then his neck was broken in a car wreck. Afterward, he got sober, found religion, and separated from Tammy. Both parents are devoted to Maggie, but their leverage is minimal. “I hear Luwana saying to Maggie, ‘It’s not about you, you’re making decisions for your daughter now,’ ” Tammy once said, “and I can almost see it on the tip of Maggie’s tongue, ‘But you didn’t, Mom. You didn’t look out for me.’ ” Tammy thought often about a day, shortly before Maggie got pregnant, when her daughter told her she was suicidal. “I didn’t want to hear it,” Tammy said. “I just wanted to believe that Maggie was the one thing in my lousy life I’d done right.” Now Maggie considered Maia one thing that she was doing right.

Luwana crouched to study the teen-ager as she and Maia played with a set of plastic blocks. Some adolescents were reluctant to play with their babies because it violated their code of nonchalance. Maggie, though, played zealously until Maia lost interest and tried to crawl away. When Maggie picked her up, Luwana objected: “She’s at an age where it’s good for her to explore. You want to let her learn to be independent.”

“House isn’t safe,” Maggie said, running her hand across a patch of rough plywood. “I gotta keep her in one place.”

“Your authority is her safety, too,” Luwana said, then whispered excitedly in Maia’s ear, “Let’s see you walk! You want to walk? I think you want to walk!”

“She doesn’t want to, she’s not ready,” Maggie protested. Luwana raised an eyebrow, and then they both laughed. It was Maggie who wasn’t ready. She said, “It’s like, stop here where it’s happy, because what if the rest ain’t this good?”

Every December, Santa Claus comes down the bayou on a shrimp boat twinkling with lights, at which time bitterness begins to rise in a swamp nurse’s heart. This is the season when families whose financial and emotional problems she’s been working for months to unravel go deep into debt, drink themselves into oblivion, and beat each other up with more than usual frequency. On Christmas Day, their babies get “Lion King” DVDs that they can’t watch, because the television has been repossessed. For Luwana, the rest of the winter is mop-up.

One morning in February, Luwana and six other nurses gathered at the Terrebonne Parish Health Unit, in a low-slung concrete building situated between a shabby neighborhood and an oil rig. A space shortage meant that the nurses conducted their weekly meetings in a storage area, but to Luwana the hours there were luxurious—a time of reassurance that she wasn’t working alone.

Waiting for the late arrivals, the nurses discussed the deficiencies of the Atkins diet and the doings of their own adolescent children. Luwana’s younger son was a smart and willful twelve-year-old, and the other nurses nodded knowingly at her assertion “I’m better with other people’s kids than I am with my own.”

The meeting came to order with the appearance of Claudette McKay, the unit’s fifty-seven-year-old supervisor; she’d been one of the first nurse-visitors in the region—apparently a memorable one. At noon the day before, as she drove through Terrebonne Parish to a local diner, a young woman in a skullcap yelled in her open window, “I’m going to carjack you!” “You skipped your birth-control appointment!” Claudette barked back, unfazed, as the girl, a client from four years ago, smiled sheepishly and promised to return to the clinic. A few minutes later, as the nurse ate lunch, a little girl across the diner started gesturing wildly in her direction. “One of mine,” Claudette said. “Interesting how, years later, they still react to the voice.”

Now Claudette’s bifocals slid down her nose as she ripped through orders of business, one item of which was the resignation of a nurse, who had taken a less stressful job. Then she turned to Luwana: “Which of your wonderful cases do you want to tell us about today?” Claudette could be hard on Luwana, whom she’d hired two years before. At the time, Luwana had envisioned a job that left time for her husband, children, and the teen-agers she tutored and counselled at her church. But in a place where resistance to nurse-visiting was great, and sixty-four per cent of mothers abandoned the program before their children turned two, Claudette expected—and in Luwana’s case eventually got—passionate commitment.

Although passion is tricky to sustain in the winter, Luwana took solace in two girls she called “my model moms” and in the unexpected stability of Alexis. On Valentine’s Day, the teen-ager had accepted a marriage proposal from Daigan’s father, who had a steady income from tugboat work. They’d moved into an apartment down the street from her parents, which Alexis planned to decorate in “purples and blues.” Away from her parents’ home, she seemed happier and marginally more attentive to Daigan; she was also, finally, on birth control. So today Luwana solicited her colleagues’ advice on a different case: a household in which, as she worked with the mother and baby, a libidinous grandmother kept trying to feel her up. “I try not to make a big deal about it, because I don’t want to lose the trust I’ve gained with the family,” Luwana said. “But I have to say, Eeeeeee! I don’t like it.”

As the other nurses burst into laughter, Claudette, who happened to know the grandmother in question, suggested that a confrontation wouldn’t be as counterproductive as Luwana feared. “Next time she tries, you just say, ‘Honey, back it up,’ ” she advised. “She’ll get that sort of language, since she’s all in your face herself.”

The discussion moved on to several mentally retarded mothers who, inexplicably, had been cut from disability rolls. The nurses sometimes had to scramble to prevent retarded mothers and their children from being evicted while convincing the bureaucracy that the person who had an I.Q. of sixty last year had roughly the same I.Q. now. And then the nurses turned to a case that worried them all: a withdrawn seventh grader in a violent household who appeared, in her third trimester, to be starving her baby.

One of the nurses said, “I’m at that door every day, but they won’t open it, and now she’s not going to school. I’m afraid she’ll try to abort the baby on her own.” The nurses hoped to get the girl into a Baton Rouge home for expectant mothers—and quickly, because when last seen she had been bloody from a fight with her mother. This abuse had been reported to child-protection authorities, who concluded that the girl was safe where she was.

That week, state officials were vowing to reform the child-protection system, after a violent shaking left an eight-month-old boy in a nearby town brain-dead. But the nurses understood what was left unsaid: though state child-abuse deaths were rising, a shortage of child-protection workers, family services, and foster parents meant that at-risk children were often stuck in dangerous homes. The nurses eventually decided that the safety of the seventh grader necessitated what they called “the back-channel option,” involving an appeal to a sympathetic local judge. Then the women grabbed their satchels and headed out down the bayous, to fresh troubles they would keep to themselves until they met the following week.

“How many centimetres?” Luwana said into her cell phone one day as she drove down the highway. “Well, baby, that’s what the epidural is for, you don’t feel it. Sometimes it also gives you chills, be ready for that. I’ll be there as soon as I can.” Luwana’s niece was about to give birth after what the nurse called “the longest pregnancy, emotionally speaking, on record,” and Luwana had been at the hospital most of the night. Her fatigue was exacerbated by the fact that her next client, Alexis, had just left a message telling her not to come. Luwana turned off the main road and drove down gravel paths in search of a cell-phone signal. First she called Alexis’s sister, whom she had recently turned into an informant, and who reported that Alexis and James, her fiancé, had been brawling. “Look, Alexis, I’m not trying to get in your business,” she was saying a few minutes later, “but Daigan is my business. O.K., O.K., can I see you tomorrow? No, I need to see you tomorrow.” When she hung up, she said, “I don’t feel good about this.”

Although by now Alexis had mastered the good-mother script—“I can’t stand leaving Daigan, he’s developing so fine and I don’t want to miss nothing”—the baby seemed, at six months, to contradict her. He was lethargic and close to obese, which Luwana attributed to Alexis’s discovery that overfeeding a baby will make him sleep more. As she fretted, her cell phone rang again. “Eight centimetres?” she said in a voice considerably brighter than her mood. “Baby, I’ll be there as soon as I can.”

Her last visit of the afternoon was with an introverted young woman named Krystal. (Many teen-age mothers on the bayou are named either Krystle or Alexis, after feuding characters in the television show “Dynasty,” which was popular when they were born.) Four months earlier, when Krystal’s son was two weeks old, the young mother had seemed overwhelmed by her baby, and further rattled by a belief that, after a Cesarean, the obstetrician had left his instruments in her belly. Since then, Krystal had become improbably adept with her son. “My pa be saying, ‘ There’s something wrong with your baby, all these noises he’s making,’ ” she now told Luwana, laughing. “I told him, Pa, you ain’t know about preverbal—my baby is talking.” Krystal, like most of the literate mothers in Luwana’s caseload, was now reading to her baby as well as talking to him, and had become obsessed with his developmental progress. That day was her son’s four-month evaluation, and Krystal watched solemnly as the nurse explained the neurological, auditory, and visual cues she was looking for, and jotted estimations in a notebook. After several minutes, the nurse sat up straight. “Mama!” she announced. “He’s on task!” Relief flooded Krystal’s face.

By the time Luwana left the house, another impoverished baby had joined the citizenry of Louisiana: her niece’s six-pound-ten-ounce son. Outside Terrebonne General Hospital, the new father was waiting to dramatize the day’s high points: “Man, I be getting sick with they snipping her little bits to get the baby out. But guess what,” he added mischievously, “he got a hairy back just like his mama.” In the recovery room, Luwana hugged her niece and dropped a gift bag on the table: condoms and contraceptive foam. “This is wonderful,” Luwana told the couple, shaking her head. “And it’s going to be a long, long time before you do it again.”

Luwana waited again on Alexis’s porch. “I knew she would do me like this,” she said, rising on tiptoe to check a bedroom window. By now, she was expert in the ruses of the poor: although they couldn’t afford to stay away long, they were often quite good at hiding. After a few minutes, she gave up and got back into her car, at which time something down the road caught her attention. She swallowed hard and hit the gas, overtaking a strapping, sunburned man on a motorcycle.

“James!” she yelled, leaning out the window. Daigan’s father turned around, surprised.

He climbed off the bike, removed his helmet, and stared past the nurse toward Alexis’s little wooden house. “Well,” he said, “she broke my heart. And you know all what I did for her—you saw.”

Luwana got to the point: “Where’s my baby?”

“The new guy got no job, on drugs, on parole, got warrants out for his arrest. And”—James’s tone suggested this failing was the greatest—“ain’t got no car.”

“And . . . Daigan? You know that’s my main concern.”

“My first thought is that Alexis is bringing that boy around people he shouldn’t be around, you know, but ain’t nothing I can do about it ’til I got definite proof. But, uh . . .” He hesitated for a minute, then told the nurse that he had caught Alexis and the young man together.

“You saw?” Luwana asked, uneasy.

“My own eyes.”

“James, did you react? Maintain . . . composure?”

“I retained my composure, Miss Luwana, I did. It was hard but I did.”

“Just get up, get out?”

He nodded.

“Takes a big man, James,” she said, exhaling. “Takes a big man.”

Tears filled the man’s eyes. “I don’t know what happened,” he said. “I’m moving out today. Dude probably up in there so I got to go.”

“But you have to work out some arrangements, James. Because whatever happens, Daigan still needs you to be the dad.”

“I know, I will,” he said, in a tone that said he wouldn’t, and as he rode off Luwana shuddered. She tended to think of a given child’s circumstances as the product of many generations; sometimes, though, the speed of change stunned her. In the time it took to smoke a cigarette, children could be stripped of their fathers. “And in the middle of this is the poor . . . Daigan,” she said as she pulled back onto the roadway, “and I can’t talk to Alexis, can’t see where her head is at, I just . . .” She took a wrong turn, braked at a dead end, and rested her forehead on the steering wheel. “I don’t know what I am doing.”

Then she sat up straight, shifted into reverse, and repeated the word she’d just said to Daigan’s father: “Composure. Composure.”

Over the winter, Maggie had stopped taking her hepatitis medicine, as it made her too tired to work. José may have contracted the disease as well, but had decided that ignorance was preferable to treatment. Luwana had ruled out ignorance in the case of their daughter, however, and arrived at the house one stormy afternoon to hear the results of the toddler’s test.

“It’s all messed up,” Maggie informed her. “We have to do the test over, but I don’t know why—maybe they don’t tell me stuff because they think I’m a kid.”

“You are a kid,” José snapped at Maggie. He was staring at her from the far end of the room, a black look in his eyes. When their one-year-old daughter ambled toward him, he scooped her up and began to sing a Metallica song into her ear:

I have lost the will to live

Simply nothing more to give

There is nothing more for me

Need the end to set me free.

“Look,” Luwana said, temporarily ignoring the domestic drama. “You guys have got to step up, make the doctors explain. Never leave that office until you understand what’s going on, even if you have to say, ‘Let me see the records’—they’re your records, because Maia is your baby. If she’s sick, you’re going to have to fight for her, and you’re going to have to have the information down.” Luwana wrote for a minute in her notebook, then looked up. “O.K., I’m all ears: What is up with you two? And Maggie, what’s the deal with the hair?”

The deal with the hair was that Maggie had dyed it black with two platinum skunk-streaks, because skunky was how she was feeling. “It’s over—we’re not getting married,” she told Luwana. “I just blew up my life, right there.” José nodded, leaving Maggie to explain: how she and José had fought, and how she’d had sex with one of his friends; how the next day, José’s high-school classmate tipped him off, and the guilty friend had proffered the details. José had promptly abandoned his cleaning-crew job, stopped his financial contributions to the household, and was moving out. Maggie’s mother sat behind the couple, listening with her head in her hands. She’d been working sixteen-hour shifts to compensate for the lost income; still, her bank account was overdrawn.

“The pressures,” Maggie said miserably. “The men come at you, and when they get what they want they don’t like you for it. I mean, I know that’s how it works. And I know that José is the person I want to marry—I wanted the three of us to grow up together.”

“Well, I don’t do forgiveness,” José said. “And I don’t do nice, either. Maybe logical, maybe even humane. But nice doesn’t help for nothing in this world.”

Luwana immediately set out to discourage José from doing what Daigan’s father had done: abandon the baby along with the mother. “You can’t take this anger out on Maia,” she told him with some heat. “This girl has bonded hard with you—you see it, you hear her call you Daddy. And if she has hepatitis it’s only that much more important that you keep the bond strong. She is going to need both of you for a long, long time.”

“She’s a smart girl,” José said, rubbing his forearms and looking at his daughter, who now stood in an open cupboard blowing kisses around the room like a film star. “We’re trying to keep it from her but I think she already knows. I mean, I’m not thinking straight, all I can think about Maggie is bad names. But if I let myself get angry . . .” He paused, then concluded, “Well, that would be it.”

“When we have a child, sometimes we feel like being a parent, and sometimes we don’t,” Luwana said. “And when we don’t feel it we act our way through it, because Maia is no sweater you bought at Wal-Mart and change your mind about.” There was a silence then, and Maggie looked away. Atop the cupboard was an old photo of Maggie in eyeglasses donated by the Lions Club—“back when I was ten and nerdful and smart.” If she had it to do over, she wouldn’t have brought Maia into the world and tried to make a family with José. But this belated realization made her feel more ashamed than she already felt.

“So fake it,” Luwana said, “starting now.” She hugged them both, then ushered them out into the storm. “No point in postponing Maia’s test,” she said by way of goodbye. “Sooner we know if she’s sick, the better we plan.”

Maggie drove to the hospital, tense and wincing. Rain pummelled the wild irises that had come into bloom on the roadsides, traffic was slow, and other drivers were being hard on their horns. “You were the coolest,” José hissed into her ear, mindful of what their daughter was overhearing. “You liked my sports, my music, my video games, and then you went and acted like any other stupid girl . . .” By the time they arrived, they were sick of the argument and each other, and they refocussed their attention on Maia. As the baby had her blood drawn, they hovered over her, declared her brave, exclaimed over a Sesame Street Band-Aid. Then they went their separate ways: José with Maia to hang out at his parents’ house, and Maggie to a week of double shifts at work.

In the month that followed, the girl’s janitorial specialties, “garbage and floors,” brought her almost unsettling comfort; it was only when she’d put up the mops that Metallica’s “lost the will to live” song began to run at high speed through her mind. There was a chance that Luwana could help her get her head straight about sex and win José back. But there was little chance that their daughter was going to have a normal life. The test results had confirmed it: Maia’s liver was already damaged by hepatitis, and the odds were one in four that she would develop potentially fatal complications.

When Maggie was seven months pregnant, Luwana had asked her to write down the qualities she hoped to pass on to her daughter. “How to be a lady,” Maggie wrote first, and then “What love is.” She wasn’t thinking then about the worst parts of herself, and how those, too, could be transmitted.

In the summer of 2005, the Census Bureau reported that poverty had increased in the United States for the fourth straight year; and the Nurse-Family Partnership produced an empirical snapshot of the one thousand mothers and children in Louisiana who had finished the nurse-visiting program. By some measures, the nurses’ efforts seemed to have been trumped by local custom: only a third of the mothers had forsaken formula to attempt breast-feeding, for instance. Other findings were more encouraging, though. By the time their children turned two, almost sixty per cent of mothers over twenty were working, and forty-one per cent of those who had started the program without a high-school diploma or equivalency degree had one in hand. And though it was too soon to determine whether their children’s intellectual capacities had been strengthened, one of the study’s findings was suggestive. Thirty per cent of toddlers had scored in the top quartile of a national test of language development. But Luwana couldn’t help thinking of the mothers and babies who hadn’t flourished, and the battle of wills she was now losing with Alexis.

Luwana had pushed Alexis to support herself instead of counting on men, and in July this wish was realized. The teen-ager took a full-time job as a short-order cook, earning six dollars an hour. And while her latest lover didn’t have a job, he didn’t have a criminal record, either, and sometimes babysat while she worked. But then there was Daigan: a jolly ten-month-old with eyes that missed nothing and a body so large that he was unable to crawl.

As Luwana held him, her trusty mind-trick—would this scene have been worse without me in it—didn’t provide the comfort it sometimes did. “I think she’ll keep making small changes in the months ahead, but now I don’t expect a transformation,” Luwana said of Alexis. “She doesn’t want for herself what I want for her, and that’s something I have to make myself accept.”

Alexis concurred with the nurse’s forecast, and decided to quit the program. One evening in August, she sat on the couch and looked at Daigan, who was on the floor in a “Motor Speedway Heavy Duty” T-shirt, staring back. “Luwana really cares about me,” she said. “And she’s helped me a lot—I learned stuff, like how old they gonna get and what they gonna go through and how they gonna grow. But what Luwana says to do—well, basically, I just do it my way.” She had recently miscarried her new boyfriend’s baby, she said as Daigan emitted a single high shriek. As she reflected on the miscarriage, sadness softened her face, until another thought hit her, and she broke into a beautiful smile. Her boyfriend was eager to try again, she said. “And next I want a little girl.”

Afew days later, Luwana arrived at Maggie’s house to find that a tropical storm had blown off part of the roof. She scarcely noticed, as she had come to celebrate a battle that she’d won. The day before, Maggie had returned to high school. The girl spiritedly shared some newfound knowledge: “In Rome, the invaders came and tried to wipe out all the intelligent people—all the teachers and libraries—because they didn’t want the competition, but then everyone ended up kind of stupid.” José, who was with her, then took her hand. Together, they informed Luwana that decisions bigger than high school had also been made. José was joining the Marines, and he and Maggie had decided to marry. In the telling, their mouths were straight lines. Love and patriotism were not much on their minds.

“I’m less nervous about Iraq than I am about marrying Maggie,” José told the nurse as he and Maggie took turns pushing the talkative eighteen-month-old Maia around in an empty diaper box. Since they lived in a community with a particularly high death rate in the war, Maggie saw the Marine Corps and marriage as equally distressing propositions. But the couple had made a hard calculation, and there were two things they wanted for their daughter that they didn’t know another way to get: good, possibly life-extending medical care and a habitable dwelling in which she might grow up.

A few days later, Katrina came through the swamps, damaging homes but sparing lives. As Luwana cared for injured New Orleaneans in a triage unit, Maggie, José, and their families undertook a familiar ritual in this hurricane alley: taping together broken windows, eating from cans, and waiting for the electricity to return. One day, Maggie, whose skin was mottled with poison ivy after bundling up fallen branches, realized that there were just enough food stamps left to buy a wedding cake at Wal-Mart.

The ceremony would take place on a building site that Maggie’s father mowed for pocket money. There was a gazebo on the field and, one rainy evening shortly before José left for boot camp, a silver cloud of mosquitoes as well. The wedding guests assembled, the shrimpers among them watching the sky as they slapped and scratched. Heat lightning flashed; somewhere, new storms were gathering, and the Gulf waters felt to them weirdly warm. They sensed another hurricane, Rita, which would arrive the following week and obliterate thousands of fragile dwellings in Luwana’s territory. Among the homeless would be Maggie and Maia.

But now the bride, waiting for her mother to find the tape with the wedding music on it, leaned into a mirror to see if her tube of lipstick had met its target despite her shakes. She’d seen enough movies to know that such trembling was normal, and that these moments before the vows were for dreaming. “Three bedrooms someday,” she said as Luwana came to escort her across the field. “And two baths.”

Afterward, Luwana tried to feel optimistic—to see, in the tough choices of two teen-agers, real hope for an impoverished American child. And if the sacrifice and exertion required to secure that tenuous possibility struck her as outsized, well, she was a practical woman, and she had a fresh obligation in a hamlet named Cut Off—a newborn whose parents had met in court-ordered drug rehab and then broke up.

“So beautiful, Miss Alaysia, even when you cry,” Luwana sang off-key to Cut Off’s newest resident, a dark-haired girl in a soiled white dress. “Real tears already? Baby, you’re quick! Now Mama, are you reading to her yet?” ♦

Annals of Medicine: A Preventable Cancer Is on the Rise in Alabama

The state’s refusal to expand Medicaid is causing poor women to miss out on lifesaving screenings.

woman at doctor
Cervical cancer disproportionately affects poor women and women of color.Illustration by Chloe Cushman

One winter day in 2016, Tonya Carter felt a sharp pain in her lower back. In the months that followed, the pain grew more frequent and more diffuse, running down the back of her legs when she was sitting, and flaring up when she lay on the sofa in her living room at night. A devout Christian, Carter prayed that God, whom she referred to as “my ultimate physician,” would make the pain go away. It didn’t go away. She would have gone to see an actual doctor, she told me recently, but it was beyond her financial means.

Carter worked for Comfort Keepers, a company that provides in-home care for seniors. She liked the job, which involved tending to elderly people who required assistance with personal care and such chores as cooking and cleaning. Carter was a dedicated caretaker, sometimes fixing homemade corn bread and turnip greens for her clients. Her salary was low: eight dollars an hour, without benefits. “That’s good for around here,” said Carter, who lives in Anniston, a small city in northeastern Alabama with a troubled racial history—in 1961, a Freedom Riders bus was firebombed by a local mob—and an uncertain future. In 1999, a nearby U.S. Army base, Fort McClellan, closed down. Since then, Anniston’s population has shrunk, and the poverty rate has risen to nearly thirty per cent. Carter sometimes considered moving elsewhere, but her options were limited. At the time she started working at Comfort Keepers, she was divorced and had four children, three of whom still lived at home. Between rent, utilities, and providing for her family’s needs, her income was stretched far too thin to pay for health insurance.

In dozens of states, Carter would have qualified for Medicaid, particularly after the passage of the 2010 Affordable Care Act, which extended Medicaid benefits to all households earning up to a hundred and thirty-eight per cent of the poverty line. But in 2014, when Medicaid expansion took hold, Alabama and twenty-four other states, almost all of which had Republican-led legislatures, opted out; that year, Robert Bentley, then the state’s governor, argued that it would burden taxpayers and foster “dependency on government.” In Alabama, as in much of the South, the Affordable Care Act was derisively called Obamacare, and was attacked as a wasteful government program that showered benefits on undeserving recipients. In 2016, Donald Trump tweeted that Hillary Clinton “wants Obamacare for illegal immigrants.” More recently, Jeff Sessions, who is running for his former Alabama Senate seat, aired a campaign ad accusing Democrats of plotting to provide “free health care for illegal immigrants.” In fact, undocumented immigrants are ineligible for Medicaid, but it’s not hard to imagine how such a claim might arouse indignation among poor voters in Alabama, where the income requirements for Medicaid are more stringent than in any state except Texas. In a family of four, a parent qualifies for benefits only if the household income is less than three hundred and ninety-three dollars a month—roughly eighteen per cent of the poverty line.

Carter had gone years without a routine checkup; she hadn’t seen a gynecologist in more than a decade. As the months passed, her mind raced with theories about what might be wrong. Maybe she had kidney stones, or endometriosis. The pain spread through her abdomen and her pelvic area, and she began to bleed after intercourse. “It was just out of nowhere, and it was continuous,” she said.

At work, Carter ducked into the bathroom whenever the pain grew unbearable, hoping that her absence wouldn’t be noticed. After one such episode, she emerged to discover that her client, an elderly man, had walked outside and fallen. Although the man was not seriously injured, she was mortified by the incident.

By the summer, Carter was suffering so acutely that she finally sought medical care. The cause of her distress, she learned, was cervical cancer. Recently, a nurse informed her that the disease had advanced to Stage IV B: it had spread to her ovaries and other internal organs, and was considered terminal. Under Alabama law, now that she was sick, she qualified for Medicaid.

Acentury ago, cervical cancer was the deadliest form of cancer among women in the United States. Since then, the prevalence and the lethality of the disease have declined dramatically. The widespread use of Pap smears has allowed doctors to detect abnormalities earlier. And in 2006 the F.D.A. approved the use of the human papillomavirus, or H.P.V., vaccine, which can protect women from the most dangerous strains of the virus. Cervical cancer typically results from H.P.V. infections that are transmitted sexually.

Cervical cancer is now viewed by most physicians as preventable, and in more affluent parts of the country it is correspondingly rare. But in the poorer pockets of less wealthy states it remains disturbingly common. According to the American Cancer Society, more than four thousand women in this country will die from the disease this year. Women who develop cervical cancer in Alabama are more likely to die than their counterparts in any other state—and in recent years Alabama’s mortality rate has been rising.

“He can’t play this game, because I’m playing Only Child.”

In 2018, Human Rights Watch published a report identifying some of the reasons for Alabama’s outlier status. Sex education is not mandated in the public schools, which may help to explain why the state ranks low in H.P.V.-vaccination rates. In small towns and rural areas, the number of doctors and medical facilities has fallen, contributing to the proliferation of a disease that disproportionately affects poor women and women of color. The Human Rights Watch report found that Alabama women without medical insurance routinely delayed getting care, “which, for some, meant that gynecological cancers weren’t found until symptoms developed to more advanced stages.”

The Alabama Department of Public Health does operate a few programs that encourage prevention, including one that provides free screening for cervical cancer. But, because the program has a small budget and little funding for outreach, many poor women are unaware that it exists. Human Rights Watch found that only eighteen per cent of eligible women were using the program.

Tonya Carter, overwhelmed by pain, eventually visited a clinic in downtown Anniston which caters to low-income people. She was discharged without receiving any diagnostic tests. “They didn’t even check my vitals,” she told me. The doctor, who criticized her for not having a gynecologist, said, almost in passing, “Why haven’t you contacted the health department?” She said nothing about free screenings. After visiting the clinic, Carter called her county health department, and learned of the state’s screening program. By the time she got a test, the cancer had spread.

I met Carter on a damp, overcast morning in December, a few weeks after she received the diagnosis of Stage IV B cancer. She had invited me to accompany her to a CT scan at an outpatient clinic. She is forty-eight, with pale-blue eyes and a diffident manner. Her scalp was bare, from multiple rounds of chemotherapy, and her short-term memory was spotty—“chemo brain,” she called it. The drugs had made her so fatigued that it was hard for her to get out of bed in the morning.

Nevertheless, Carter had forced herself to wake up early that day; like all her cancer-related medical appointments, the CT scan took place sixty miles west of Anniston, at a clinic near Birmingham. Since 2010, fourteen hospitals in the state, more than half of them in rural areas, have closed, forcing women to make long treks to get care. Corporate consolidation and low reimbursement rates from the federal government have contributed to the trend, but another major factor is Alabama’s refusal to expand Medicaid. For years, the emergency rooms of rural hospitals have been inundated with poor, uninsured patients. Hospitals often receive no compensation for treating these patients, which lowers their operating margins and fuels what the Chartis Center for Rural Health has called a “closure crisis.” In February, the organization reported that the eight states with the highest number of rural-hospital closures since 2010 had all declined to expand Medicaid.

Carter’s fiancé, Patrick Poore, a soft-spoken man wearing rimless glasses and a Crimson Tide sweatshirt, had driven her to the appointment. Afterward, they invited me to lunch. They told me that they’d prayed together that morning, hoping for some good news. As Carter’s condition worsened, she had to tell Comfort Keepers that she was too sick to work; as a result she lost her main source of income.

The one thing that she no longer had to pay for was medical care. The irony was not lost on her. “It took me having cancer to get some assistance,” she said. “If I was going to yearly checkups, it could have been caught way before. If I’d had the means, the insurance, prior to that, then it would have been prevented.”

Carter wondered how much longer she would be around to care for her children, including her youngest daughter, a seventeen-year-old who has diabetes. “There are days when I’m depressed,” she said. “I worry about my children, and what their life would be like if I wasn’t there.” Tears pooled in her eyes. Carter then told me that she and Patrick, whom she began dating a few years ago, were in love, but that he was hesitant to marry someone who was terminally ill. “I want to know what it’s like to be married with him—to have a life with him,” she said, her voice thick with grief. “And I don’t know if that’s gonna happen.”

In Tuscaloosa, I met thirty-eight-year-old Laquisha Brant, who received a diagnosis of cervical cancer in 2019. She lives in a Section 8 apartment with a grime-stained entrance and bare walls. Before Brant learned that she had cancer, she was married and had a job at a nursing home. She was now too weak to work, her marriage had unravelled, and she was surviving on a combination of public subsidies and assistance from the Laura Crandall Brown Foundation—a nonprofit, based in Birmingham, that offers financial support to women with gynecologic cancer. “It’s like my whole life had to stop,” she told me, over lunch at a Red Lobster. She listed other things she’d lost: her hair, her eyebrows, her vigor, her appetite. One bright spot was her doctor, who, she said, had helped her through the most difficult phases of her treatment. “She cried with me,” Brant said. But, though she was hopeful that her final chemotherapy treatment, in early December, would put her cancer in remission, she was unsure whether she could continue to get follow-up care, since a nurse had called her recently to inform her that her Medicaid was being cut off. Jennifer Young Pierce, a gynecologic oncologist in Mobile, told me that although low-income people with breast or cervical cancer qualify for Medicaid, the benefits were often discontinued once the disease went into remission. “It’s ‘Good news, you’re cancer-free!’—and then they drop you like a hot potato,” Pierce said. More than sixty per cent of cervical-cancer recurrences take place in the two years after an initial round of treatment has been completed. Any lapse in coverage could have dire consequences, Pierce said, since recurrences were “more often lethal than not.”

Pierce has been fighting for years to get Americans to change their approach to cervical cancer. A South Carolina native, she first witnessed the link between poverty and the disease while she was in medical school. As part of her residency, she worked in an outreach clinic in Cape Town, South Africa. The clinic’s director, Lynette Denny, had set up examination rooms in shipping containers, so that impoverished women living in remote townships could be screened for cervical cancer; in developing countries, the disease remains one of the leading causes of women’s death. Denny urged Pierce to provide similar services for vulnerable women in her own community. In 2012, Pierce and a colleague launched an organization called Cervical Cancer-Free South Carolina, and also helped run a mobile-clinic outreach unit that dispatched an R.V. to rural areas to offer Pap smears.

A few years ago, a friend recruited Pierce to come to Alabama, where the cervical-cancer problem was even worse. She now runs the Cancer Control and Prevention program at the Mitchell Cancer Institute, in Mobile. One of her missions, she told me, was to educate other doctors in the state about the H.P.V. vaccine, which many pediatricians in Alabama recommend halfheartedly, perhaps accepting the unfounded view that it encourages sexual activity. Pierce told me that she’s been going “door to door,” trying to persuade pediatricians to push back when families resist vaccinating. It was difficult work, she said, not least because two dozen counties in Alabama had no pediatricians, which meant that she had to “track down family-medicine doctors,” who are less likely to offer vaccinations in the first place. She also had to treat the gravely ill women who flowed into her clinic “like the tide.” On Christmas Eve, she’d attended to a young woman in her mid-twenties as she died of cervical cancer. Pierce informed the woman’s parents and siblings, who rushed to the intensive-care unit to say goodbye. Everyone in the room was sobbing, Pierce recalled. Even when cervical cancer was caught at an early stage, she said, the standard treatment was “a horror”—weeks of intensive radiation that caused aneurysms, sexual dysfunction, infertility, and scarring. “There are days when I feel like we are on the front lines of an epidemic that nobody wants to talk about,” she told me.

Along with increasing vaccination rates, broadening access to health care is an obvious way to fix the problem. But, in much of the South, a surprising number of the poor and working-class people who would benefit from changing the system are opposed to doing so. A few years ago, Jonathan Metzl, a psychiatrist and sociologist at Vanderbilt, began organizing focus-group discussions near churches and low-income housing projects in Tennessee, which, like Alabama, had refused to expand Medicaid under the Affordable Care Act. At one such meeting, in Nashville, a group of working-class white men were invited to talk about the health-care system. Many of the participants—amputees, men with oxygen cannisters—were in visibly poor health. Some acknowledged having to rely on various forms of assistance to deal with their ailments. “I would be dead without Medicaid or the V.A.,” one man said. But, when Metzl asked about the role of “government” and about programs such as the Affordable Care Act, a man complained that people on welfare with “ten and twelve kids” were abusing the system. Another claimed that “illegal mothertruckers” received all the benefits, and that ordinary Americans were subsidizing them. A flurry of complaints about Mexican immigrants followed, prompting one man to say, “We’re starting to sound like Donald Trump.”

In 2019, Metzl published a book, “Dying of Whiteness,” in which he argued that people who voiced such views, fuelled by racial animosity and “the toxic effects of dogma,” ended up supporting policies that put their own lives at risk. “No way I want my tax dollars paying for Mexicans or welfare queens,” a white former cabdriver suffering from terminal liver disease told him. “Ain’t no way I would ever support Obamacare, or sign up for it. I would rather die.” A growing body of evidence suggests that clinging to such beliefs has indeed shortened lives. States that expanded Medicaid under the Affordable Care Act have seen reductions in mortality from kidney failure and cardiovascular disease, along with an increase in early-stage cancer diagnoses. They have also seen lower rates of infant and maternal mortality. A study published last July by the National Bureau of Economic Research estimated that, from 2014 through 2017, states that expanded Medicaid saved the lives of more than nineteen thousand adults between the ages of fifty-five and sixty-four alone. In the states that rejected expansion, the researchers concluded, fifteen and a half thousand lives were lost.

The data, though striking, may not be enough to loosen the hold of racial resentment. As Metzl and others have pointed out, states where benefits are scarce are precisely where this kind of anger is most likely to flourish. Since the early two-thousands, the journalist Thomas Frank and other writers have argued that Republicans, by harnessing such frustrations, have repeatedly persuaded many working-class citizens to vote against their economic interests. Metzl contends that Republicans have been just as adept at getting lower-income whites to vote against their “biological self-interests.”

Tonya Carter, of Anniston, told me that she didn’t follow politics closely—her fate, she liked to say, was in God’s hands. But, in our initial phone conversation, she said that if she had been able to get insurance through the Affordable Care Act she surely would not have developed advanced cancer. This made me think that, unlike the working-class men quoted in Metzl’s study, she believed that the government has a responsibility to care for people who cannot afford to pay for health insurance. When Carter and I met, she told me how optimistic she’d been when she first heard about the A.C.A. “I was so excited,” she said. “I was hoping that it would benefit me.” Then she went online and learned that the cheapest plan cost hundreds of dollars a month—far more than she could afford. Her enthusiasm gave way to bitterness. “What came out of Obama’s mouth?” she said. “ ‘Every citizen will have insurance.’ And it failed. To me, it failed, and I’m pretty sure there are other people in my shoes who feel like it failed.”

“You knew I was a cat lady before you married me.”

But Carter did not fully comprehend why the Affordable Care Act had “failed” in Alabama. She didn’t realize that, in the three dozen states that have expanded Medicaid since 2014, the law had made it possible for millions of low-income people to get insurance at no cost. When I mentioned this, she looked surprised and distraught. “It’s pretty upsetting to hear,” she said. She was even more perturbed to hear that a common reason cited by politicians for rejecting Medicaid expansion was a desire to avoid burdening taxpayers. “I wonder what those people who don’t want their taxes to be raised—what if they had a loved one in my shoes?” she said. “What’s the cost of giving the citizens of Alabama insurance versus allowing us to die?”

According to a study conducted by David Becker, an economist at the University of Alabama at Birmingham, expanding Medicaid would by now have cost Alabama seven hundred and seventy-one million dollars—a figure that reflects both treatment costs and administrative expenses. But Becker calculated that, even with the federal matching rate for new Medicaid enrollees starting to fall in 2017, these costs would be more than offset by folding existing state programs into Medicaid, and also by levying taxes on the billions of Medicaid dollars spent in Alabama. Indeed, he believed that expanding Medicaid would generate a net surplus of nine hundred and thirty-five million dollars. Becker told me recently that he had expected his study to inspire “some debate” in the Alabama legislature. “That never happened,” he said. Perhaps this was because many of the voters in Alabama who stood to benefit most from Medicaid expansion kept backing politicians who opposed it. As I discovered, Tonya Carter was one of those voters. Although she didn’t consider herself to be a political person, she told me that in the 2016 Presidential election she voted for Donald Trump, who is intent on overturning the Affordable Care Act.

“I had my reasons,” Carter said of her vote. Trump is a businessman who, she figured, could “help the economy, maybe make a difference.” I asked her if this had happened in Anniston. “Not yet,” she replied.

She then mentioned another reason that she supported Trump. It really bothered her that “foreigners” could come to America and “get free health care, free assistance in living, food stamps,” while many U.S. citizens were denied these things. “It’s not right when you are born here, and you pay taxes, and you work your tail off your whole entire life, and you still can’t get health insurance,” she said. “But a foreigner can cross the border and they instantly get their needs met.” She paused. “That’s one reason why I voted for Trump. I don’t think it’s right.”

Jim Carnes, a health-policy expert at Alabama Arise, an antipoverty organization, told me that expanding Medicaid would provide coverage for roughly three hundred and forty thousand additional Alabamians. About half of the newly insured would be low-income whites. Carnes doubted that this was common knowledge among white Alabamians, given the deeply ingrained popular association of public benefits with poor African-Americans and Latino immigrants. Robyn Hyden, the executive director of Alabama Arise, told me that early in her career, when she was an organizer in northern Alabama, she tried to educate low-income people about health care and the Affordable Care Act. “When you actually talk to people about the policy, it’s very popular” among both liberals and conservatives, she said. “But, in general, people don’t come into the room knowing about it. They’ve heard a partisan message about it.”

Broadening access to health care in such states as Tennessee and Alabama would not, of course, benefit whites alone. A few days before meeting Tonya Carter, I drove to the Vaughan Regional Medical Center, in Selma, in the heart of Alabama’s Black Belt. Named originally for its rich, dark topsoil, the Black Belt was once dotted with cotton fields and slave plantations. During the civil-rights movement, it was a center of political ferment. More recently, the region has become known for the staggering poverty among its majority-African-American residents. In 2017, Philip Alston, the U.N.’s Special Rapporteur on extreme poverty and human rights, visited the Black Belt, and saw raw sewage being dumped outside homes in rural areas; he told a local reporter that he had never seen such deprivation in the First World.

The rural counties in the Black Belt were the focus of the Human Rights Watch report on cervical cancer. As the report noted, black women in Alabama are almost twice as likely as white women to die if they develop the disease.

Experts attribute this to racial discrimination that is embedded in the health-care system and to the likelihood that, when African-Americans do receive care, it is often of lower quality. The Human Rights Watch report notes that, “even when Black women with cervical cancer earn as much as white women, they are still at higher risk of death from the disease.”

Among the physicians quoted in the report was William Michael Stevens, an ob-gyn who runs the women’s-health clinic at the Vaughan Regional Medical Center. In the report, Stevens described the case of a woman in her twenties who had come to see him because she was bleeding after intercourse. She had gone to the emergency room three times, but had not received a pelvic exam on any of the visits. She hadn’t undergone a Pap smear in years. When he performed an exam, he discovered that she had advanced cervical cancer.

“There’s been several cases like that,” Stevens said when I visited him, in his cluttered office, on the fourth floor of the hospital. In his view, the medical system was not always to blame. Sometimes patients who had gone to screenings and had abnormal Paps didn’t return for follow-up procedures. “Compliance is a big problem,” he said. But Stevens, who grew up poor, added that he understood why women in the Black Belt sometimes failed to make it to appointments. Getting a colposcopy cost several hundred dollars, which patients without coverage often couldn’t afford, and many patients had to drive long distances to reach his office. He opened a red folder on his desk and pulled out a pamphlet comparing Alabama’s rural counties in 1980 and in 2019. In the 1980 map, forty-five of the fifty-four rural counties had hospitals that provided obstetric services. In the 2019 map, just sixteen did. This, too, was a product of Alabama’s refusal to expand Medicaid, which led rural hospitals to cut essential services in order to avoid going out of business. Stevens pointed to several counties surrounding Selma: Wilcox, Chilton, Lowndes. “None of these counties have any ob-gyn coverage,” he said.

Dallas County, where Selma is situated, once had three hospitals. Today, the Vaughan Regional Medical Center is the only one that remains open. When Stevens first joined its staff, he was one of seven ob-gyns. He now had just one colleague, Shawnequa Brown, who first visited Selma to attend a nephew’s high-school graduation. In 2018, she came back to serve as a medical provider, because, she told me, “there’s such a need.” One factor driving the need was episodic health-care coverage. Many women in the area would see a doctor while pregnant, because they qualified for Medicaid, but stop going when coverage was withdrawn. “Once they’re no longer having children, they just don’t get checked,” Brown said. Another problem was a lack of education, which sometimes led women to think that they’d been given cancer screenings even though they hadn’t. “I’ll ask a patient, ‘When was your last Pap smear?’ ” Brown said. The patient would say, “Oh, I had one at the emergency room.” Then Brown would check and discover that the procedure was actually a speculum exam, which does not screen for cancer.

Isabel Scarinci, a behavioral psychologist at the University of Alabama’s Division of Preventive Medicine, said that, among poor women, a lack of education was sometimes compounded by a sense of resignation. “Women may think, If I find out I have cancer, how can I deal with it?” she said. Scarinci is one of the leaders of the Deep South Network for Cancer Control, which trains local volunteers who work to reduce rates of disease in low-income minority communities.

Shortly after visiting the hospital in Selma, I drove thirty miles northwest to Marion, a small town in Perry County, to visit a nonprofit called Sowing Seeds of Hope, which works with Deep South Network volunteers. Housed at the end of a rutted dirt path, it operated everything from a weekly hypertension clinic to a child-screening program for vision problems. Its executive director, a nurse named Frances Ford, described these services as “Band-Aids” in a county where more than one in three people were poor. We walked to a low-slung building on the other side of the dirt path: the Perry County Health Department. While there, we spoke with Pilar Murphy, a pharmacist, who catalogued the obstacles patients faced. “Some of it is transportation, some of it is funds,” she said. “Some of it is just knowing how to traverse through the health-care system.”

I asked Murphy how much of a difference it would make if Alabama expanded Medicaid. “It would be huge,” she said. She described the case of a sixty-two-year-old man with a history of cancer and diabetes who had recently lost his medical insurance. Murphy had helped him find low-cost options for his diabetes medication, but the man still had to pay out of pocket for follow-up care, and was consequently avoiding doctor visits.

After we chatted with Murphy, Ford took me on a tour of Perry County and drove past some of the rudimentary local housing—trailers coated in rust, shacks missing doors and windows. We pulled up to an attractive red brick building set behind a metal fence and a line of trees: the former local hospital. Ford had been advocating for Perry County to open a new one—she understood how difficult it could be for poorer residents to drive several hours to see a specialist. After her own mother learned that she had cervical cancer, in 1980, she had been forced to drive all the way to Birmingham for care. In the car, Ford reached into her coat pocket and handed me a letter that her mother had written. Addressed to her children, it described her waning energy and a mounting sense that there might not be “many more tomorrows.” A few weeks later, Ford told me, her mother died.

“Just because they all work from home now doesn’t mean I don’t still keep an eye on them.”

One day, I met a woman named Lacie Gunter, a single mother with two young daughters who lives in a housing complex in West Mobile. A few years ago, she began feeling pain in her side. When the pain grew excruciating, she started showing up at the nearest emergency room, hoping to see a doctor. She’d been on Medicaid when she gave birth to her younger daughter, five years ago, but when she presented her Medicaid card she was informed that her coverage had lapsed. She told me that, at these E.R. visits, she was never given a Pap smear or encouraged to get a cancer screening. (None of the women with cervical cancer I interviewed in Alabama had been aware of the free screenings.) Gunter did receive plenty of judgmental looks, from nurses who saw her address, and her bad teeth, and assumed that she was an alcoholic or a dope addict. In fact, she does not drink or do drugs. “I’d say, ‘I’ve never done drugs in my life—please help me,’ ” she said. “They did not believe me.”

Gunter eventually stopped seeking care. Early one morning, at around two-thirty, she woke up in writhing pain. When she went to the bathroom, she saw that she was bleeding. After taking her older daughter to school, she set off for her mother’s house to drop off her younger daughter, thinking that she could then head to the hospital. But on the way to her mother’s house she began feeling light-headed. She pulled into a Dollar Store, where she bought some Tylenol and went into the bathroom to try to stanch the bleeding, which had got heavier. From the parking lot, she called her parents and told them that she needed help. Her father picked her up and drove her to the emergency room. Gunter told the nurses, “I’m dying—I’m bleeding out.” After twelve hours of waiting and a series of examinations, she was transferred by ambulance to Children and Women’s Hospital, where a gynecologic oncologist performed a biopsy, under anesthesia, and initiated instant radiation. Later, Gunter learned that she had advanced cervical cancer.

By the time I met Gunter, in November of last year, she had undergone months of chemotherapy and radiation treatment. She was hopeful that the cancer would go into remission, but she knew that, if it did, she could once again be without insurance. “I’m terrified,” she told me.

Her physician was Jennifer Pierce, the gynecologic oncologist, who was on call at Children and Women’s Hospital on the day that Gunter was brought in. Pierce said that Gunter had been lucky. “A patient who is hemorrhaging from cervical cancer without appropriate medical care absolutely could die—quickly,” she told me. Pierce explained why Gunter’s illness should never have advanced so far. One missed opportunity came in 2010, when Gunter, at the age of twenty-one, gave birth to her first daughter: she could have been administered the H.P.V. vaccine during that hospital visit. Then there was the period after Gunter’s Medicaid lapsed, when she stopped getting checkups or seeing a doctor.

Gunter is thirty-one, with dark- brown hair and a weary gaze. Like Tonya Carter, she told me that she is not a political person, but she grew angry when recalling how she felt during her visits to the E.R. “Had they just given me one chance to explain the type of pain I was in, had someone just done one simple exam, they would have found it,” she fumed. “I was not treated like I was even a person, really.” Gunter told me that she still woke up every morning to braid her daughters’ hair, but she worried that her physical limitations might cause them to suffer. Before getting cancer, she’d hoped to be trained as a welder; now she wasn’t healthy enough to begin searching for a job. “I wake up and I’m in pain, I go to sleep and I’m in pain,” she said. “I’m stuck—I’ve got girls to take care of, and I don’t have very much help.” A proud Alabamian who told me that there was no other place she wanted to live, she expressed frustration about another thing: when people in Alabama talked about protecting “life,” it always seemed to be about unborn babies, and never about poor women like her. “That bothers me to my core,” she said.

To Gunter, this smacked of hypocrisy. But it was also possible to see Alabama’s strict anti-abortion laws as consistent with the state’s general lack of concern for the health and well-being of poor women. “In Alabama, we have one of the highest maternal-mortality rates in the country,” Jennifer Pierce told me. “It is more lethal to be black and pregnant in Alabama than in some poor countries.”

Pierce and other activists have had some success in their fight against cervical cancer. Since 2010, the proportion of adolescents in Alabama receiving a dose of the H.P.V. vaccine has increased from forty-six to sixty-five per cent, and there are signs that opposition to the Affordable Care Act has begun to soften. “It’s a function of distance from the Obama Administration,” Jim Carnes, of Alabama Arise, told me. It was also a function of Alabama officials seeing health indicators in other states improve while their own population suffered and rural hospitals slid further into crisis. Cervical cancer was just one aspect of the problem: a vascular surgeon in Montgomery described to me a similar pattern with heart disease. People sought medical attention only during a heart attack, or after developing extensive vascular disease. Such delays put lives at risk and, the surgeon pointed out, also drove up the cost of care.

In the past few years, a number of conservative states that had initially opposed the Affordable Care Act, including Virginia and Louisiana, have reversed course and expanded Medicaid. Edward Partridge, a gynecologic oncologist and a former director of the University of Alabama’s Comprehensive Cancer Center, believes that this will soon happen in Alabama. When I asked him why, Partridge, who is a Republican, said, “It’s insanity—how long can insanity last?” J. David McCormack, the C.E.O. of the Vaughan Regional Medical Center, the last remaining hospital in Selma, told me, “I’m a conservative person. But we’ve got to do Medicaid expansion.” The spread of covid-19 further imperils the state’s health-care system. On March 24th, David Becker, the economist, published an op-ed in the Birmingham News arguing that, given the threat posed by the pandemic, “now is the time to finish Medicaid expansion in Alabama.”

One person who has yet to come around to this position, at least publicly, is Kay Ivey, Alabama’s Republican governor. Ivey, who has the authority to sign a rule change that would expand the program, declined to comment for this article. But she is surely aware that many people in her state lack health care. Ivey grew up in Wilcox, a county in the Black Belt which, a few years ago, had to scramble to prevent its only hospital from closing. Last year, she was among the elected officials who received a copy of a report issued by the Alabama Study Commission for Gynecologic Cancers, a coalition of medical specialists, administrators, and survivors appointed by the Alabama legislature and the state’s governor. The report contained some startling passages. “Cervical cancer is almost entirely preventable and yet in Alabama there are areas where women are dying at a rate similar to that of developing nations,” it noted. It also pointed out that Alabama has the third-highest ovarian-cancer mortality rate in the country, even though cases of ovarian cancer are slightly less common in the state than in the U.S. as a whole.

These findings may not move Ivey, who, in 2018, proposed establishing a work requirement for the small portion of parents and caregivers in Alabama who receive Medicaid, forcing poor people who must care for a child or a disabled adult to find jobs or lose their benefits. (The proposal remains before the state legislature.) But Ivey, who is seventy-five, has since had some health problems that may have deepened her appreciation of how essential access to medical care can be. Last August, during a routine medical exam—the kind of checkup that women without insurance usually go without—a doctor discovered a small malignancy in her lung. Fortunately for her, the cancer was detected early, and treated immediately, with stereotactic body radiation therapy, at a state-of-the-art oncology center in Montgomery. In January, scans revealed that Ivey was cancer-free. “I am profoundly grateful for this good news,” she announced, thanking God, her “dedicated team of physicians,” and “the good people of our great state.” ♦

In the Land of the Very Old

Jan 23, 2024 — by Sam Toperoff in  Original  for THE SUNDAY LONG READ 1. Passports, or Prescriptions I am writing this in a blue notebook I ...